The XLH Network is currently in a year-long process of working to grow our organization and better meet the needs of the XLH community. As part of our initiatives, we have designed a survey in hopes of getting feedback from our members. Your feedback is invaluable, and it will allow us to think strategically about how to best advocate for XLH patients and families.
You can reach the survey through the following link:
We expect the survey to take no more than fifteen minutes of your time, and we appreciate your input!