Wednesday, May 7, 2014

Follow up study of adult XLHers

If your XLH was treated at the St. Louis Shriners Hospital when you were a child, or you know anyone who was treated there, Dr. Whyte is looking for former patients, who are at least 21 years old now, to return to the facility for a research study.

The details, along with contact information, are available at our website, here. (If the link doesn't work for you, go to the XLH Network's website, and then, under the "What is XLH" tab, there's a link to "clinical trials," and if  you click on that, you'll see a listing for "Shriners Hospital for Children - A study to learn about XLH and HPP during adult life." There's a link under there to the PDF with the official information.)

The XLH Network, Inc. does not endorse or critique specific research studies, and does not counsel individual patients either for or against participation in any specific research study. Prospective volunteers should always carefully review the research study's informed consent documentation and protocol, and discuss the pros and cons of their participation with trusted advisers, including their health care providers and family members.

No comments:

Post a Comment

Note: Only a member of this blog may post a comment.