If you want to have some input into future research and the clinical understanding of XLH patients' experiences, you're running out of time to participate in the Burden of Illness survey. The last day to accept input is this coming Monday, December 8.
It's a busy time of year, so don't wait or you'll probably get distracted with other things. Follow this link now:
And note that the survey is available in French now, in addition to English!