Wednesday, January 28, 2015

Thanks for the support!

We are all excited about the possibilities that 2015 brings for families with XLH, and we hope you are too! But as this first month of the year comes to an end, we wanted to express our appreciation for all of you who gave to our end-of-the-year campaign. We cannot do this without you and your generosity, and we are excited to say that we exceeded our fundraising goals this year!

We held our first-ever Giving Tuesday event—bringing the Network and the families we serve to the attention of the nonprofit community. Our number of end-of-year donors increased by 29% this year. And, ultimately, it is the percentage of people who give to the network that matters. We need to be able to show potential funding organizations that our members value what we do.  And last, but not least, our end-of-year giving amounts for 2014 increased by 92% compared to 2013!

So, thank you for making sure that we ended 2014 on a high note, and let's not stop in 2015. There will be numerous opportunities for you to give throughout the year this year, and we hope you will consider giving so that you can help us host additional XLH Days, provide additional educational materials to our members and physicians, and continue to advocate for families dealing with XLH on all fronts.

Thank you for assisting us in our efforts to raise awareness and one day find a cure for XLH.

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