We need teeth!
Don't worry, we don't want you to pull out healthy ones and send them to us, but if you're an adult XLH patient who's having a tooth extracted in the next few weeks, we could use it for research.
One of our SAB members, Carolyn Macica, PhD, is researching the mineralization of our teeth, which ought to provide useful information about mineralization in our bones. She has already studied a number of baby teeth, which are relatively easy to get from the tooth fairy (although she could use some more if you have them to send), but adult teeth are more difficult to come by.
So, if you're planning to have a tooth pulled soon (or perhaps your young-adult child is having wisdom teeth pulled), please consider asking the oral surgeon to keep the teeth, so you can send them to Dr. Macica for research. Or if you kept teeth that were pulled in the past, those can be used for research too.
Dr. Macica needs them ASAP, preferably by the end of February, so if you're planning to send them after that, please check the Network's website where we list clinical trials (http://xlhnetwork.org/index.php/what-is-xlh/clinical-trials/) to see if she still needs more teeth.
Here's the address to send the teeth:
Dr. Carolyn M. Macica
Frank H. Netter School of Medicine
275 Mt. Carmel Avenue
Hamden, CT 06518-1908
She would be happy to reimburse the North American postage cost, if you include a note with the amount and your address.