Wednesday, February 11, 2015

World Rare Disease Day

The last day of February is World Rare Disease Day, which is intended to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

World Rare Disease Day is, as its name suggests, a global undertaking. It was founded in Europe, and now there are at least 84 countries participating.

In the United States, Global Genes has a week of activities in the D.C. area, and other local organizations have them scheduled through the country.

To look for an event near you, start here: http://www.rarediseaseday.org/events/world and then click on  your country.

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