. . . but TOGETHER we are STRONG.
That's the motto for Give RARE Day.
We hope you'll participate and support the XLH Network, Inc. Our page is here: http://giverare.razoo.com/story/Xlh-Network
If you can donate, that's great. If you can't, there are other ways to help. The goal, beyond fundraising, is to bring together everyone who's affected by a rare disease to make our voices heard. There are more people affected by rare diseases than by cancer, and yet there's far less money and research invested in rare diseases.
So spread the word: Individually we are RARE but TOGETHER we are STRONG. Tweet about the event with the hashtags #giveRARE and #XLHNetwork, mention it on facebook with the same hashtags or simply have a discussion about Give RARE Day with friends and family to raise awareness.