Members of the Network's Scientific Advisory Board were active at the annual conference of the American Society for Bone and Mineral Research (ASBMR) in Seattle this year.
SAB member Suzanne Jan de Beur, M.D., was the recipient of this year's Shirley Hohl Service Award at the conference. The award is given to an individual whose activities best represent the dedicated and unselfish devotion in service to the ASBMR and its mission and goals. The official press release is here: https://www.asbmr.org/Publications/News/NewsDetail.aspx?cid=0cb27ab8-0484-4ffe-a5be-0398bfcdd413#.VhhPaflVhHw Network President Becky Mock and Treasurer Geoff Edelson were there to cheer her on.
SAB chair Carolyn Macica, PhD was on several panels, including one on a subject that many of us know a little too well, but is just starting to be documented in the medical community: "Pain Resulting From Unresolved Skeletal Disease Has a Significant Impact on the Daily Function of Adults with XLH."
SAB member Thomas Carpenter, MD, was also on several panels, including one with fellow SAB member Raghbir Kaur DMD, on the use of traditional treatment in LXH adults and its effects on enthesopathy and teeth.
SAB member Michael Econs, MD was also on several panels, although none were directly relevant to the XLH community.