Tuesday, December 8, 2015

Research into XLH adults' issues

Two news stories relevant to XLHers were included in the Quinnipiac University's magazine recently, and you can read them here: http://www.quinnipiac.edu/prebuilt/PDF/Magazines/QU_fall15/Quinnipiac_Fall_2015_Bracing-for-Impact.pdf

The first one is about a relatively new technique for leg-straightening surgery that was used on an adult with XLH to apparently good effect

The second one is about the gait, mobility and range of motion study led by our Scientific Advisory Board Chair, Carolyn Macica, PhD, and featuring member Marina Velazquez. 

Smaller-scale research like Dr. Macica's that can be funded via seed grants is something we'd like to support in the future, especially since governmental sources of funding are drying up. To do that, we need to increase our budget. Can you help with a potentially tax-deductible contribution during our year-end campaign? If so, please donate now: https://donatenow.networkforgood.org/xlhnetwork?code=donate%20page

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