The National Organization for Rare Disorders (NORD) is working with the Hole in the Wall Gang Camp (http://www.holeinthewallgang.org/) to host a special Summer Family Camp for rare disorders for a long weekend, from June 2 to 5.
The event is free of charge for twenty-five families who reside in the northeast United States (the camp is in Connecticut). To be eligible for consideration, you must submit an application that includes medical consent forms for each family member who will attend, and a medical exam form relating to the child with a rare disorder, to be completed by the family's own medical provider.
Applications are due by April 1 (but don't wait; there are limited slots!). The application is available here: http://rarediseases.org/event/first-ever-rare-disease-summer-family-camp/