Thursday, February 25, 2016

Rare Disease Day 2016

Next Monday, February 29th, is World Rare Disease Day.

Network board member Gin Jones will be part of a Rare Disease Day panel discussion at Simmons College, from 6 to 8 pm in the School of Management Building, Room M201. The public is welcome, and for more information, you can contact

Also that day, Scientific Advisory Board member Carolyn Macica PhD is involved with the Second Annual Rare Disease Day event at Quinnipiac University from noon to 4 p.m. Pre-registration is required (no later than February 27), but is free: The agenda includes a performance by Nora Johnson, a patient panel, and keynote speaker Dr. Frederick Kaplan.

For events in other locations, check out

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