Around the world with XLH: Spain

The Spanish Association of Hypophosphatemic Rickets and Osteomalacia (AERHyO) has been busy in recent months, advocating for Spanish patients and their families, and we're happy to share their news with the rest of our global community.

The group held a press conference in November 2017, with Dr. Manuel Diaz Curiel, consultant at the Bone Metabolic Diseases Unit of the Internal Medicine Department of the Jiménez Díaz Foundation in Madrid, to advocate for early diagnosis and better treatment. You can read about it in the following articles (linked to the original Spanish, but you can run it through Google Translate to get the gist of the articles):

http://ecodiario.eleconomista.es/sociedad/noticias/8739900/11/17/Los-pacientes-con-raquitismo-hereditario-reclaman-un-diagnostico-precoz-y-el-acceso-al-tratamiento.html

 http://www.larazon.es/atusalud/salud/nuevas-opciones-para-tratar-el-raquitismo-GH16994064

http://www.actasanitaria.com/raquitismo-hereditario-cambio/

http://www.cuatro.com/noticias/sociedad/Pacientes-raquitismo-hereditario-diagnostico-multidisciplinar_0_2466975386.html

In addition, the president of AERHyO,  Sonia Fernández Serrano, was interviewed by MoreThanDoctors.com about XLH, and you can read the interview here: http://www.morethandoctors.com/?p=725

The AERHyO pesident also recorded an interview that can be viewed at youtube here: https://www.youtube.com/watch?v=191q_QVXGAg If you lose the direct link, you can find it in the playlist at the Network's youtube channel: https://www.youtube.com/channel/UCOCxS6CV6NeNxoFFivOyNpg