An official message about XLH Day from the Founder and Chair of XLH Day 2018 Elizabeth Olear:
This year we are combining XLH Day with a Symposium focused on the adult symptoms and complications of the disease for the FDA. In the coming days and weeks we will be providing complete information about the events of "XLH Weekend."
What I can share today is that the venue for both the Symposium and XLH Day is the Hyatt Regency Baltimore Inner Harbor. https://www.hyatt.com/en-US/hotel/maryland/hyatt-regency-baltimore-inner-harbor/bwirb
Guest Rooms have been negotiated to start at $129/night. If you would like to reserve your guest room ahead of the official release of the block, please send an email to: firstname.lastname@example.org
We are looking forward to seeing you in Baltimore! Please check back here and at the OFFICIAL XLH NETWORK FACEBOOK page for the ONLY places where accurate and up-to-date info will be posted.