It’s Meet a Member Wednesday! Our next awesome member for you to meet is Robert D! He was born in New Jersey and currently lives in Trucksville, PA. Robert was diagnosed with XLH at 6 years old through lab work. XLH runs on his mother’s side of the family. His mother, maternal grandmother, sister, and many aunts and cousins have all been diagnosed with XLH. However, his two sons (ages 19 and 28) do not have XLH.
Robert wanted to share the following pain management tip: “Try to stay active and get out, out in the public. Don’t just sit home and get in that pattern, or you will fall into a depression.” Following his own advice, Robert joined a bowling league 2 years ago and has continued to not let XLH stop him. Robert also enjoys the outdoors and loves fishing, swimming, and gardening. He can even make a mean salsa!
Robert was introduced to the XLH Network by a doctor at Quinnipiac University. He has this to say about finding the Network, “I have a growing XLH family from all over the USA and other countries. It’s nice to talk to each other knowing we all understand what it is like.”