Monday, January 21, 2019

XLH Community Connections

We have finalized the dates and locations of our XLH Network regional patient meetups for 2019! We will be calling these regional meetups "XLH Community Connections."

The purpose of XLH Community Connections is to connect you with doctors, patients, and caregivers that live in your region. Each XLH Community Connection will be a full-day educational and social event that will consist of presentations by physicians and other clinicians, patient stories, and roundtable discussions. As part of the XLH Community Connections, we will also have a fun-filled children's program to allow children ages 5-12 to connect with each other. Feel free to bring the whole family!

If you live near one of the planned locations, we hope that you will join us and have the opportunity to connect with others in the XLH community! If we aren't coming to a location near you in 2019, we will host 3 more XLH Community Connections in 2020 tentatively planned for Orlando, Chicago, and Dallas.

NOTE: We also plan to host a gathering in San Francisco on April 12th, the night before the Ultragenyx Patient Day. We hope to connect with many of you there!

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