 |
| Add caption |
Monday, June 18, 2012
New Clinical Study at Yale
Yale is currently seeking participants for a new study researching the "Use of Nasal Calcitonin to Suppress FGF23 in X-linked Hypophosphatemia". Please see the flyer below for details.
Sunday, June 17, 2012
XLH Network members raise over $5,000
The Inmans, whose daughter has XLH, held a fundraiser this past Spring raising over $5000 for the XLH Network. The fundraiser engaged local business owners, friends, and family and included raffle items, proceeds from dinner receipts, and sales of t-shirts designed by their daughter.
In addition to raising money, the event raised awareness for XLH and showed that a small grass roots effort from dedicated people can have a huge impact.
Below is a picture of Sandesr Inman presenting her t-shirt to Dr. Carpenter at the Yale Clinic for XLH.
In addition to raising money, the event raised awareness for XLH and showed that a small grass roots effort from dedicated people can have a huge impact.
Below is a picture of Sandesr Inman presenting her t-shirt to Dr. Carpenter at the Yale Clinic for XLH.
Monday, June 4, 2012
XLH Day 2012
Save the Date: 9/8/2012
Please join us for XLH Day 2012
hosted by Greg & Arlene Iorizzo
and their family & friends at Hopewell Junction NY, USA
XLH Day 2012 will be similar in format to XLH 2011, featuring guest speakers by XLH experts representing the medical, research, and dental fields.
We look forward to this very exciting day. More details will follow shortly.
hosted by Greg & Arlene Iorizzo
and their family & friends at Hopewell Junction NY, USA
XLH Day 2012 will be similar in format to XLH 2011, featuring guest speakers by XLH experts representing the medical, research, and dental fields.
We look forward to this very exciting day. More details will follow shortly.
Subscribe to:
Posts (Atom)