Get your copy now!

Our book, Weak Bones, Strong Wills, the Stories of XLH is available now at major online retailers!

Here's an excerpt from the back cover copy:

Our bones are soft, our lives are hard, but we are strong and resilient. We persevere, despite all the challenges. But if there's one thing that can slow us down, it's the lack of solid information about the real-life consequences of our rare medical condition. That's why we're here to tell the real stories of XLH and the people affected by it. Not the medical jargon, not the numbers and charts, but the real-life experiences of patients and their families. 

Thank you to everyone who submitted a story. We couldn't have done this without you!

Once you've read the book, we hope you'll post a review at your distributor of choice. Reviews are especially important for reaching readers who may not know anyone with XLH, but would like to read about what it's like to live with a rare medical condition, as well as those who have XLH but haven't heard of the Network yet!

Here's where you can get your copy:

Paper copies
Amazon: https://www.amazon.com//dp/1975845803/

Digital copies

Amazon: https://www.amazon.com/dp/B075MQMZXG/

Bn.com: https://www.barnesandnoble.com/w/weak-bones-strong-wills-the-stories-of-xlh-the-xlh-network-inc/1127123821?ean=2940154555545

Kobo: https://www.kobo.com/us/en/ebook/weak-bones-strong-wills-the-stories-of-xlh

Smashwords: https://www.smashwords.com/books/view/748082

Weak Bones, Strong Wills!

Our book of the XLH community's experiences with the condition, Weak Bones, Strong Wills, the Stories of XLH has been compiled and edited, and now is going through a final proofreading. We think you'll find the stories inspiring, and you'll recognize many of the experiences from your own life or a family member's life.

We're on schedule to have paper copies available for purchase and autographing during XLH Day, and both digital and paper copies will be available then from online retailers like Amazon.com, BN.com, and Kobo.com. We'll share the links as soon as they're available.

Meanwhile, you can see a rough mock-up of the cover art (still a work in progress) at our official facebook page, https://www.facebook.com/xlhnetwork/?ref=bookmarks

Thanks to everyone who submitted a story!