The XLH Network, Inc., is investigating the possibility of establishing country-wide groups affiliated with the Network to address more local issues than a global organization is equipped to handle.
To that end, board member Oliver Gardiner is looking for volunteers to assist in the creation and operation of an affiliate in the UK (primarily England and Wales). He is looking for individuals (with or without XLH) who could volunteer their skills and expertise to ensure the health and growth of the organisation. You must be over the age of 18.
To find out more and request an application form, please email: oliver.gardiner at xlhnetwork.org
Showing posts with label volunteers. Show all posts
Showing posts with label volunteers. Show all posts
Tuesday, November 8, 2016
Wednesday, May 20, 2015
What YOU can do
The XLH Network is always interested in recruiting volunteers to help us meet our mission. We realize that we talk about our need for volunteers frequently, but at this time of year the nominating committee always considers how to increase involvement in an attempt to ensure that we have our bases covered and that we are continuing to grow and extend the reach of the Network. We want all patients with XLH to have access to early diagnoses and the best treatment possible, and it takes a lot of volunteers working together to try and meet this goal!
As we look toward 2016, the nominating committee is hoping to recruit volunteers in any number of capacities. Do you like to write? We need volunteers who are interested in writing blog posts about their experiences with XLH. Are you interested in moderating conversations on the forum we are developing? We need volunteers who are interested in trying out the new forum and being trained in how to moderate various threads. Also, there's been a lot of discussion lately about future XLH Days in various parts of the world, but to make that happen, we need volunteers to help organize them. There might be opportunities for less formal regional gatherings too, but again we'd need someone local to be part of the project. Are you interested in serving with others as a point of contact for your region? And, finally, we have a number of other initiatives that aren't ready for unveiling, and we could use people with organizing, clerical, photography, tech, graphic design, local fundraising, database design, and public speaking skills to help us meet our goals.
Of course, we would love it if you could commit to lots of hours every month, but we can also use help that just involves one hour per month, or project-based assistance that begins and ends with a specific project.
The Network is growing, and it is exciting! But as we grow, we are going to need more and more help from volunteers to ensure that we are reaching as many families and medical professionals as possible. We hope that 2016 is the year you will volunteer your time. If you are interested in volunteering, post on our Facebook thread or send us a private message. We are looking forward to everything the next calendar year is going to bring!
Wednesday, August 6, 2014
A few good volunteers
As we mentioned in the Mid-Year Report a few weeks ago, the Board has been busy, and we expect to be even busier over the next eighteen months, now that we have a Strategic Plan in place.
Over the last year a number of our members have volunteered to serve on committees and write for our blog, and with our new Strategic Plan in place, with dozens of action items, we need even more volunteers!
As your intrepid blogger, I can always use a short commentary from a member about the challenges and triumphs of living with XLH (or especially about parenting an XLH child), similar to the pieces written by volunteers SJ Hunter, Jennifer West, Rachael Jones, and Andrew Shortall.
We also hope to do more fundraising in the future, so we can ensure the organization's sustainability and make our communities aware of the ways XLH affects people they know and love. The fundraising committee could use some support, and not just financially! If you are interested in organizing an event in your local community, let one of us know, so we can send you our fundraising guidelines.
As we grow, we'll be having a presence at more events in various parts of the country to educate the medical/dental community. Sending multiple Board members to those events to represent the organization can be costly, and doesn't fully take advantage of the skills and knowledge of our members, so we'll be looking for members who live near events to assist at them. Most of the dates and locations aren't determined yet, but if you'd be interested in assisting a Board Member in a booth at a medical conference, let us know, and indicate the general geographic area that's within a commuting distance for you.
Finally, we have a couple initiatives in the works for improving members' social interaction, so we can meet each other in person; we'll need a handful of volunteers to help with those efforts. We're currently forming a committee to organize these events, and we'll be announcing another social-interaction project soon, both of which will require several volunteers to supplement the work the Board can do.
I know we have some wonderful, knowledgeable and skilled members. If any of you can spare just a few hours every so often, or perhaps a few days a year, for the Network, please let me know (gin.jones at xlhnetwork.org). Together, we can do great things.
Over the last year a number of our members have volunteered to serve on committees and write for our blog, and with our new Strategic Plan in place, with dozens of action items, we need even more volunteers!
As your intrepid blogger, I can always use a short commentary from a member about the challenges and triumphs of living with XLH (or especially about parenting an XLH child), similar to the pieces written by volunteers SJ Hunter, Jennifer West, Rachael Jones, and Andrew Shortall.
We also hope to do more fundraising in the future, so we can ensure the organization's sustainability and make our communities aware of the ways XLH affects people they know and love. The fundraising committee could use some support, and not just financially! If you are interested in organizing an event in your local community, let one of us know, so we can send you our fundraising guidelines.
As we grow, we'll be having a presence at more events in various parts of the country to educate the medical/dental community. Sending multiple Board members to those events to represent the organization can be costly, and doesn't fully take advantage of the skills and knowledge of our members, so we'll be looking for members who live near events to assist at them. Most of the dates and locations aren't determined yet, but if you'd be interested in assisting a Board Member in a booth at a medical conference, let us know, and indicate the general geographic area that's within a commuting distance for you.
Finally, we have a couple initiatives in the works for improving members' social interaction, so we can meet each other in person; we'll need a handful of volunteers to help with those efforts. We're currently forming a committee to organize these events, and we'll be announcing another social-interaction project soon, both of which will require several volunteers to supplement the work the Board can do.
I know we have some wonderful, knowledgeable and skilled members. If any of you can spare just a few hours every so often, or perhaps a few days a year, for the Network, please let me know (gin.jones at xlhnetwork.org). Together, we can do great things.
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