Back in April, we posted a picture on our Facebook page of our Board members attending the ISPE-CaSA event in North Carolina, but we've been so busy that we haven't had a chance to tell you all about it.
ISPE-CaSA is the Carolina - South Atlantic chapter of the International Society for Pharmaceutical Engineering. They hold a technology conference every spring, and they designate a "featured charity" for the event. This year, the XLH Network, Inc., was that charity, and we received a donation of Five Thousand Dollars (plus another thousand dollars from a raffle).
Dr. Ali Skrinar from Ultragenyx was kind enough to attend the conference and share some of her knowledge of XLH with the attendees. Our president, Becky Mock, also attended the conference, along with Board members Oliver Gardiner and Geoff Edelson, and local XLH Network members, Rebecca Putnam and Sheila Hunter.
The current ISPE-CaSA newsletter has a picture of Becky receiving the large check, and there's also a picture of the XLH booth at the event. You can read the newsletter here. (Scroll down a bit; the report starts on page 10).