Wednesday, February 8, 2017

Meet Executive Director Carol LaFleur

We are pleased to announce that Carol LaFleur, an experienced nonprofit professional, most recently as the Executive Director of the Northeast Kidney Foundation, has taken on the role of the first ever Executive Director of The XLH Network, Inc.

We could not have taken this step without the hard work of past and present board members, volunteers and the XLH community, or without a generous grant from Ultragenyx Pharmaceutical. We are extremely grateful to everyone who made this big step forward possible.

It will take some time for Carol to settle in and get to know everyone in our community, from patients and family members to clinicians and researchers, so until then, here's what she had to say in response to our three basic interview questions:

1. How did you get involved with the XLH Network? I found the advertisement on and it piqued my interest. After reading about the organization and learning some of the goals the board wants to accomplish, I became increasingly excited for the opportunity.

2. What's your "super power" -- the special skill, knowledge or experience that you bring to the board? I don't know if I have a "superpower" per se, but I am very passionate about healthcare. Having a long history of working with patients and families, I am very committed to making a difference and helping others understand the challenges anyone living with a chronic illness faces. 

3. What XLH project are  you working on now that you're particularly enthusiastic about? The board has a very strategic vision for where they want to bring the organization, and I am excited to have an opportunity to help carry that out. The clinical developments are very promising as well, and I am excited to be joining the organization at a time that is really positioning the organization for growth. I look forward to working with everyone and learning how I can best be of service!

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