The Hole in the Wall Gang camp in Ashford, Connecticut, in collaboration with the National Organization for Rare Disorders is holding a spring weekend for families dealing with rare disorders, May 31 to June 3. It's free, and the activities include fishing, campfires, arts and crafts, as well as opportunities for parents to chat with others in similar circumstances.
If you live in the northeast and your family would be interested, you can apply here: https://rarediseases.org/wp-content/uploads/2018/01/2018-Spring-Family-Weekend-Application.pdf
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