1. How did you get involved with the XLH Network, and then how did you become an officer of the organization?
In February 2011, a round-table meeting was conducted at the Yale New Haven Hospital facility. Members of the Board of Directors were in attendance personally or via telephone. Besides Board members, people (members of XLH Network, family and friends of people with XLH ) who were interested in the direction the XLH Network, Inc. was headed in (and wanted to help in some way) were in attendance.
When the round-table meeting was adjourned the Board of Directors held an official Board meeting. At that official meeting I was asked by the President and Vice-President if I would consider filling the soon to be vacated position of Treasurer. My sister-in-law (who has XLH) who was on the Board turned to me and asked me to do it for her son and daughter (who also have XLH). It would have been totally unacceptable for me to say no since I was asked to do it for the sake of two people who are very dear to me. Since March 2011, I have been serving in Officer positions and being an Officer I am a member of the Board of Directors as well.
2. What's your "super power" -- the special skill, knowledge or experience that you bring to the board?
I don't believe that I possess a super power. Since my full time employment had been as a cost accountant for many years (I am retired now), to a certain degree it seemed natural that I would fit in reasonably well as Treasurer. My subsequent years of service to the XLH Network, Inc. has exposed me to many activities on the Board and I now currently serve as Vice-President. My ardent desire is to see the XLH Network function as a valuable asset to all those afflicted with XLH.
3. What XLH project are you working on now that you're particularly enthusiastic about?
As Vice-President, I am enthusiastic about helping out in any way that I can with what needs to be done. New opportunities are opening up for us. These are exciting times and I want to assist in all of these opportunities. Each and every project that I work on, I am enthusiastic about because I know that every one of them will benefit our members in some way. That is what we are all about.