Wednesday, October 29, 2014

Last call for photo challenge

The deadline for our challenge to capture "What XLH means to me" in a picture is coming up fast: this Saturday, November 1.

We've got some great pictures for our guest judge (Laura Hensser, a photographer and Curatorial Project Assistant with London's Tate Modern), but we'd like to see some more!

Remember that we're looking for a wide variety of experiences, not limited to time spent in medical and dental offices. No one thing defines us all, or captures every moment of our lives. So, let's see the diversity of what XLH looks like!

If you'd like to participate in this challenge,  there are just three things to remember:

1. You  have to be a member of the Network (or the child of an adult member) to participate.

2. You can submit up to three pictures per member by sending the digital files to In the subject line of the email, please indicate either: "challenge, adult" or "challenge, minor."

3. Some pictures may be chosen for promotional use by the Network, so we'll need to have a written release from you. Along with the picture file(s), please attach a PDF file of the signed photo release (parents/guardians must sign for anyone under the age of 18). You can find the release here:

If you can't scan the signed release to send it back as a digital attachment, you can print the form, sign it and mail it to our headquarters: 911 Central Ave. #161, Albany, NY 12206.

If you have any questions that aren't addressed here, please post them to the listserv, so everyone can see our answers.

We can't wait to see your pictures! We'll share the very best with you in December.

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