Monday, October 20, 2014

Midwest XLH Day

Join us for our first Midwest XLH Day on November 14-15, 2014 in Indianapolis, IN!  

At Midwest XLH Day, you will meet other families dealing with XLH, discuss the challenges, learn how others cope, and develop new strategies for managing your own or your child’s symptoms.

Due to a generous educational grant from Ultragenyx Pharmaceutical, the XLH Network is offering a limited number of free hotel rooms on Friday, November 14 for up to 30 families, a reception on Friday evening, an educational program and lunch on Saturday, and tickets to the Children’s Museum Saturday afternoon.  Guest speakers for this event will be Erik A. Imel, M.D., Alison Skrinar, PhD, and Scientific Advisory Board member, Carolyn Macica, PhD.

We are pleased to announce that registration for this event is officially open.  Please go to and register now!

You must be a Network member to register, but joining is free. Just go to, click on "become a member," and follow the links.The last day to register for this event is November 8th.

We look forward to greeting old friends and making new acquaintances!  

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