Tuesday, May 3, 2016

XLH around the world: Paris

In France, XLH is known as RVRH (comparable to the vitamin-D resistant rickets terminology in English), and there is a French-speaking group known as the "Association pour les personnnes atteintes de rachitisme vitamino-resistant hypophosphatemique." You can check out their website (and Google will translate it for you, so you can at least get the gist of the text) here: http://www.rvrh.fr/

They're currently working with some other European groups on the first Symposium on X-Linked Hypophophospatemia in Paris, France, to be held on September 9, 2016. It's scheduled for the day before the conference of the European Society of Pediatric Endocrinologists, making it convenient for clinicians and researchers who are already traveling to Paris for the larger conference.

Two members of our Scientific Advisory Board will be speaking at the event: Thomas Carpenter, M.D., and Carolyn Macica, PhD. So will Pol Harvengt, a great friend to the XLH Network, and one of the authors of a medical journal article entitled "Therapeutic management of hypophosphatemic rickets from infancy to adulthood," available here: http://www.endocrineconnections.com/content/3/1/R13.full.pdf+html

Plus: Paris in September! Who wouldn't want to go?

The event is primarily for clinicians and medical researchers, as opposed to patients, but if you know someone in the medical community who might be interested in attending, please refer them to the website here: http://www.rvrh.fr/spip.php?article52

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