The theme of this year’s Rare Disease Day is "Research." We all know how important research is for the XLH community, and as we gear up for a potentially life-changing 2018, we hope you will become a Rare Disease Day champion.
You can download our toolkit for ways to participate. Have your city or town declare February 28th as Rare Disease Day! Tell your story! Host a meetup!
Or you could participate in #HandprintsAcrossAmerica with the information here: http://rarediseaseday.us/get-inv…/handprints-across-america/
You can also help us raise funds on Rare Disease Day by creating a personal campaign and letting everyone know why the Network is important to you.