Today is #RareDiseaseDay to raise awareness of rare disease.
In state and national capitols all around the world, rare disease advocates are making an impact and putting a face to rare disease. In Washington, DC, there's a whole week of activities, as you can see from a recap of a previous year's events here : https://youtu.be/FVcWGzY7pm8
You too can #showyourrare online or wherever you live.
Please consider a Rare Disease Day gift to the Network and help us work toward a potentially life-changing 2018 for our entire XLH community. You can donate here: https://xlhnetwork.networkforgood.com/projects/45764-rare-disease-day-champions